En anglais / US documentation

• Children's Hospital Colorado (clinique du Colorado) :
l'eXtraordinarY Kids Clinic est une unité médicale pluridisciplinaire unique pour les enfants atteints d'anomalie chromosomique X et Y.

• The Association for X and Y Variations (AXYS) is an advocacy, education and support organization for individuals with X and Y chromosome variations and their families.
(website)

Project au sein de l'association : XXYY Project - Awareness and Undertanding for families and those affected by XXYY Syndrome
(website)

Publication 2016